Prader-Willi Syndrome (PWS)
PWS is a rare genetic disorder that affects a child's appetite, growth, metabolism, cognitive functioning, and behavior. Continuous feelings of insatiable hunger (hyperphagia) and slowed metabolism are present. PWS symptoms and behaviors exist on a spectrum. Therefore, children will exhibit different degrees of common PWS traits, which can also change as the child gets older.
“Children with PWS can no more control their appetite than they can control a sneeze. It is imperative that the child’s environment be modified; trying to change a child’s desire for food or food-seeking behavior is futile without limiting access.”
PWS educational Resources
prader-willi syndrome: a primer for school psychologists +educators
Bedard, K.E., Pacha, D., Griffith, A.K., & Ward, S. (2024). Prader-Willi Syndrome: A primer for school psychologists. Children and Youth Services Review.
Education & Learning
PWS Overview for School Personnel (Tri-fold)
7 Common Learning Difficulties Associated with PWS
Educational Implications of PWS
Behavior & Emotional Regulation
6 Key Behavioral Features of PWS
Most Common Outburst Triggers In PWS
C.L.E.A.R. Communication Strategies
Schedule Change Cards & Implementation
Health & Nutrition at School
Health Concerns & Strategies at School
Parents’ Guide to Individualized Health Plans (IHP)
Nutritional Phases in Prader-Willi Syndrome
Ensuring Food Security in the Classroom
Questions to Evaluate Food Security at School
