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Prader-Willi Syndrome (PWS)

PWS is a rare genetic disorder that affects a child's appetite, growth, metabolism, cognitive functioning, and behavior. Continuous feelings of insatiable hunger (hyperphagia) and slowed metabolism are present. PWS symptoms and behaviors exist on a spectrum. Therefore, children will exhibit different degrees of common PWS traits, which can also change as the child gets older.

Children with PWS can no more control their appetite than they can control a sneeze. It is imperative that the child’s environment be modified; trying to change a child’s desire for food or food-seeking behavior is futile without limiting access.
— Educational Considerations for Children with Prader-Willi Syndrome by Naomi Chedd, Karen Levine, and Robert H. Wharton

PWS educational Resources

Learning & Education

Behavior & Emotional Regulation

Nutrition & Food Security

For additiONAL INFORMATIOn visit these leading PWS Organizations