CALL TO ACTION ~

CALL TO ACTION ~

Printable school Resources

Prader-Willi Syndrome (PWS)

PWS is a rare genetic disorder that affects a child's appetite, growth, metabolism, cognitive functioning, and behavior. Continuous feelings of insatiable hunger (hyperphagia) and slowed metabolism are present. PWS symptoms and behaviors exist on a spectrum. Therefore, children will exhibit different degrees of common PWS traits, which can also change as the child gets older.

PWS educational Resources

Prader-Willi Syndrome: A Primer for School Psychologists

Bedard, K.E., Pacha, D., Griffith, A.K., & Ward, S. (2024). Prader-Willi Syndrome: A primer for school psychologists. Children and Youth Services Review.

IEP Guides & references

  • Alphabet Soup of Special Education (acronyms)

  • Transitioning from an IFSP to an IEP

  • IEP Supports: Accommodations & Modifications

  • Medical vs Educational Evaluations

Education & Learning

  • PWS Awareness—Fact Sheet

  • Educational Implications of PWS

  • 7 Common PWS Learning Difficulties

  • Updated PWS Overview for School Personnel (trifold)

Behavior & Emotional Regulation

  • 6 Key Behavioral Features of PWS

  • Most Common Outburst Triggers In PWS

  • C.L.E.A.R. Strategies to Empower Empathy

  • Strategies to Support Self-Regulations at School

  • Schedule Change Cards & Implementation

  • Effective Adult Response Strategies

Health & Nutrition at School

  • Health Concerns & Strategies at School

  • Parents’ Guide to Individualized Health Plans (IHP)

  • Nutrition and Healthy Eating

  • Nutritional Phases in Prader-Willi Syndrome

  • Ensuring Food Security in the Classroom

  • Questions to Evaluate Food Security at School

Request your Free copies of these PWS School Resources today!

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“Children with PWS can no more control their appetite than they can control a sneeze. It is imperative that the child’s environment be modified; trying to change a child’s desire for food or food-seeking behavior is futile without limiting access.”
— Educational Considerations for Children with Prader-Willi Syndrome by Naomi Chedd, Karen Levine, and Robert H. Wharton

For additiONAL INFORMATIOn visit these leading PWS Organizations

Special Education Online Resources

If you or someone you know is struggling,

free and confidential resources are available 24/7:

  • For immediate, life-threatening emergencies, call 911.

  • For mental health crises, you can call or text 988. 

  • For non-emergency support and local resources, you can call or text 211.